Living Life Beautifully Disabled 

What a crazy two years I have had. I had MALS surgery finally in 2022 and have been learning how to live life again, being married! I...

I have been so behind on blogs from weddings and recovering from MALS surgery that I realized I never wrote a blog about us getting...

I have been living life since I recovered from MALS surgery and it feels great. I went on a trip to oversee a wedding for a client and it...

It’s been four weeks between posts. I tried to write this blog over and over again but I just felt like I was letting all of you down. I...

I am on week four of surgery recovery. Each day has been different. I started walking on Monday and felt great. On Tuesday I woke up...

It sure has been a while since I wrote a blog! I was busy living life and waiting on MALS surgery. I am excited to say that I had a...

It is with disappointing news that I have to say my second celiac plexus ablation did not work. I was so bummed. The pain returned and I...

Since my last blog so much has happened. The doctor I was so hopeful about totally blew me off and just abandoned my case. I spent two...

With my MALS under control, I have been able to establish myself with a new orthopedic doctor well versed in avascular necrosis. We have...

I have been fortunate to have received two celiac plexus ablations this year and both have been successful in controlling my pain and...

I am so happy to let you know I have been pain free from my celiac plexus ablation on December 2nd for three months now. I have been able...

I have been receiving blocks and ablations since 2017 for the treatment of Neurogenic MALS. My celiac plexus region where the nerves all...

Now that 2020 is over I am ready for a fresh start to a great year. I have been away from the computer for the past couple of months...

Well it sure has been a long two years of eating food. And enjoying every moment of it. Some days my body still starves itself and other...

I am still continuing my treatment of celiac plexus blocks as needed. Thank goodness for an amazing pain doctor who allows for the use of...

Well I got the dreaded disability denial letter. The judge was not in my favor at all and thought since I gained weight I recovered from...

It has been a year since I last wrote a blog and so many things have changed. I am diagnosed with a definitive diagnosis of MALS which...

I am still waiting on my new letter from Social Security and Disability. Before we left for France, I had received a letter that stated...

This is a bummer. My celiac plexus block wore off. I am so surprised I got over two months with my last block and it even lasted for the...

What an incredible two weeks we have had in France. It’s amazing what we did and accomplished while here. We saw three regions of France,...